Interviewees: Parents, Gary & Kathy

Daughter: Katelynn, Age 9, CDKL-5

Main Goal: To sit up on her own, stand, and walk one day

You want to go to a place where you feel like they're on the same team, that you're working together towards a goal.  I've never seen somebody work so hard at that as Christine.  All the services that are provided here, with Sibshops and working with different organizations, trying to raise money for different organizations.  It's not just about the therapy-- it's about the entire experience.  You always want to go somewhere where you feel like you're a team working on something as a goal and that's what we feel here.”

What were your goals when you first started working with Breakthrough?

G:  Well, we certainly wanted to strengthen her core to begin to develop some of the skills that we'd like to see.  Skills that she had lost in the past with big bouts of seizures.

K:  The core was very important to us because that seems to be the beginning part of being able to sit independently and walk.

What kind of improvements or impact on Katelynn's life have you been able to see as a result of working with Breakthrough?

G:  We've seen a lot of progress in the period of time that she's been here in terms of holding herself up better and being able to sit up and keep better head control.  Those are the sorts of things that we're starting to see now.  Things that we hoped would improve over time and then get to a point where she's able to sit up independently.

What do you love most about visiting our office and working with Breakthrough?

G:  First off, I think she actually enjoys it and we like to see her smiling and being able to work at something.  Chance comes and visits us every once in a while which is always great and Christine is always smiling.  We like coming to a place where we feel welcome and that Katelynn is doing something that helps her out, which is always a goal of ours.

K:  Absolutely.  I'd have to say that we always feel welcome here, Katelynn's progress, Christine is awesome, she's amazing.  I'm just very very happy that we found this place and that Katelynn is progressing the way she is.

What would you want other people to know about working with us?

K:  I think you're just very accommodating.  Even if it's with time frames or with what your concerns are.  I think that you're very open to hearing us out and what we are looking for as far as with her progress.  And that you care.  You care about her.  You care about the patient.

G:  You want to go to a place where you feel like they're on the same team, that you're working together towards a goal.  I've never seen somebody work so hard at that as Christine.  All the services that are provided here, with Sibshops and working with different organizations, trying to raise money for different organizations.  It's not just about the therapy-- it's about the entire experience.  You always want to go somewhere where you feel like you're a team working on something as a goal and that's what we feel here.

Is there anything else that you want people to know?

G:  Everything that we said, you will experience here and is probably not something you will see at other places, in terms of the dedication and caring for your child as if your child is the only child that's here.  That's the feeling that I always get-- Katelynn is the only child that matters. That's how I always feel when we come in the door.